A new comprehensive definition of long COVID aims to provide recognition and support for those affected by the condition, enhancing diagnosis and treatment. Introduced by the U.S. National Academies of Sciences, Engineering, and Medicine on June 11, the definition addresses previous inconsistencies in defining long COVID, which varied widely in terms of symptoms, timelines, and proof of infection.
Harvey Fineberg, who chaired the committee responsible for drafting the definition, noted that the lack of standardization had left many patients struggling to have their experiences acknowledged and to access appropriate care. The committee incorporated input from over 1,300 individuals affected by long COVID, opting to adopt the term “long COVID” itself rather than other medical descriptors.
This decision aims to validate the experiences of those who have felt marginalized or ignored due to their ongoing symptoms, which can persist for months after initial COVID-19 infection. Symptoms can range widely and affect any part of the body, potentially including over 200 different symptoms such as breathing difficulties, cognitive issues, and cardiovascular problems.
The definition emphasizes inclusivity, encompassing individuals regardless of their initial COVID-19 test results or symptom severity, and is designed to evolve with ongoing research. It is expected to provide a framework that patients can use to advocate for themselves and receive appropriate medical attention, countering previous dismissals of the condition as purely psychological.
Moving forward, the National Academies’ definition is likely to influence healthcare policies and practices, despite lacking legal enforcement power. Its broad scope aims to ensure equitable recognition and support for all individuals grappling with the long-term effects of COVID-19.
